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The proposals will propose concrete measures for tackling structural barriers to health research and innovation, including those related to capacity, skills, policy, regulatory environment, and economic and socio-cultural factors including gender equality issues and gender dimension in research content. More information and call documents here. Support will be provided to clinical trials on substances where orphan designation has been given by the European Commission, where the proposed clinical trial design takes into account recommendations from protocol assistance given by the European Medicines Agency, and where a clear patient recruitment strategy is presented.

The intervention must have been granted the EU orphan designation at the latest on the date of the full proposal call closure. A concise feasibility assessment justified by available published and preliminary preclinical or clinical results and supporting data shall also be provided. The centre of gravity must clearly be the clinical trial s. The participation of SMEs is encouraged. Proposals should deliver novel concepts for disease-mechanism based patient stratification to address the needs for stratified or personalised therapeutic interventions.

The proposals should integrate multidimensional and longitudinal data and harness the power of -omics, including pharmacogenomics, systems biomedicine approaches, network analysis and of computational modelling. The new concepts of stratification should be validated in pre-clinical and clinical studies taking into account sex and gender differences. Applicants are encouraged to actively involve patient associations. The proposals should consider regulatory aspects of clinical practice and commercialisation opportunities.

Proposals should focus on complex diseases having high prevalence and high economic impact. The Commission considers that proposals requesting a contribution from the EU of between EUR 4 and 6 million would allow this specific challenge to be addressed appropriately. More information and call documents: here. Proposals should compare the use of currently available preventative or therapeutic pharmacological as well as non-pharmacological healthcare interventions in adults[1].

While there is no restriction on the diseases or interventions to be the focus of proposals, preference will be given to proposals focusing on interventions with high public health relevance and socio-economic impact, i. A cost effectiveness analysis must be included. Given the focus on existing interventions, proposals will aim to contribute to improve interventions, take decisions about the discontinuation of interventions that are less effective or less cost-effective than others, and make recommendations on the most effective and cost-effective approaches.

A comprehensive array of clinical and safety parameters, as well as health and socio-economic outcomes e. Agreed core outcome sets COS should be used as endpoints in conditions where they already exist, in other cases efforts should be made to agree on such COS. Randomised controlled trials, pragmatic trials, observational studies, large scale databases and meta-analyses may be considered for this topic. Organised by Rare Diseases Ireland. If you follow a cohort of patients with FMD, and are willing to contribute to the European FMD registry and join a network of specialists interested by the clinical and basic aspects of the disease, please contact us FMD-saintluc uclouvain.

Read the call here. Registration until March 20th here. Agenda here. Scope: from at least 3 countries Description: The activities to be carried out concern the creation of new registries on rare diseases. These registries should constitute key instruments to increase knowledge on rare diseases and develop clinical research. Collaborative efforts to establish data collection and maintain them will be considered, provided that these resources are open and accessible. Registries should be built with the support and according to the standards set up by the European Platform on rare diseases registration and provide all necessary data to the Platform taking the relevant data protection rules into account.

Call text: here. Budget: EUR 1.

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All information: here. The Maltese Presidency has established Rare Diseases as one of its core priorities.

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Watch the video for the World Lymphedema Day! How to get involved and support Rare Diseases Day : here. Being nearly at the half-way point of the 3rd Health Programme which runs from to , the Commission would like to evaluate whether it is meeting its objectives and whether there is room for improvement. It is open to any interested parties in order to gather views and opinions on:. ERC Consolidator Grants are designed to support excellent Principal Investigators at the career stage at which they may still be consolidating their own independent research team or programme.

Applicant Principal Investigators must demonstrate the ground-breaking nature, ambition and feasibility of their scientific proposal. The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear translational research approach. Projects shall involve a group of rare diseases or a single rare disease following the European definition i.

The specific objective of this call is to promote research projects focusing on the pre-clinical development of therapeutic approaches in suitable existing animal or cell models. Call document: here. Call forms: here. Guidelines: here. This will be founded by the European 3rd Health Programme.

The objective of the consultation is to collect information from a wide audience on different aspects of Horizon implementation. The results of this consultation will feed into the report on the interim evaluation of Horizon , will help the European Commission to improve the implementation of Horizon and will set the scene for the future discussions on the next EU research and innovation funding post Answer to the consultation here.

All information on the calls for Innovative Training Networks available here. The main philosophy of the meeting will be unchanged and our mission will be to offer to the participants an update focused mostly on the practical aspect of vascular surgery through a dynamic format based on rapid paced presentations. More information on the BoMS here. Programme and contact for registration available here. Read the recent review paper on Fibromuscular Dysplasia and the European FMD initiative , a collaborative research coordinated by Prof.

COST is the longest-running European framework supporting trans-national cooperation among researchers, engineers and scholars across Europe. Call documents and guidelines to submit a proposal here. The deadline for applications is 30th November The conference will specifically celebrate the 10 th anniversary of the UN Convention on the rights of persons with disabilities.

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Presentations and discussions will focus in an interactive way on the progress which has been made in the EU to promote the rights of persons with disabilities, based on the UN Convention. The aim of the conference is to disseminate the findings from the RARE-Bestpractices project and offer a forum for discussing with relevant stakeholders how this work could be taken into account in delivering better health decision making and health policies for rare diseases. Proposals should address as primary aim public procurement of innovative solutions PPI to facilitate the deployment of an eHealth infrastructure taking into consideration the European eHealth Interoperability Framework and EU guidelines adopted by the eHealth Network.

The PPI s , and any accompanying innovation activities in particular by participating procurers themselves to facilitate the uptake of newly developed solutions, should focus on clear target outcomes such as allowing the sharing of health information, the use of semantically interoperable Electronic Health Records EHRs for safety alerts, decision support, care pathways or care coordination. The Commission considers that proposals requesting a contribution from the EU of between EUR 3 and 4 million would allow this specific challenge to be addressed appropriately.

It includes a session on primary lymphoedema and financial inequalities in access to care. Draft programme: here. The purpose of this conference is to provide a global forum for all stakeholders within the Rare Diseases field, both locally and abroad, to participate in open discussion, enhance models of best practice and share specialist knowledge around rare diseases and orphan drugs. Incorporating the annual International Conference on Rare Diseases and Orphan Drugs ICORD for , RareX has an extended program, to incorporate patients, their families and caregivers as well as support groups and minority groups within the rare disease community.

Information and registration here. The overall aim of this workshop is to generate and agree guidance and good practices for ERNs to collect and share data for care within the framework of ERNs. Potential Coordinators of the ERN project proposals being currently assessed by the European Commission have been invited to attend. The previous 3 Thoracic Aortic Disease Summits brought together prominent clinical, translational and basic scientists who presented research on disease etiology, pathogenesis, progression and treatment.

This meeting will be held to continue sharing new findings from GenTAC and the research community, to discuss the current advances regarding disease pathogenesis, progression, and treatment and to identify future directions for the field. The 17th Biennial Meeting of the European Society for Immunodeficiencies ESID offers unparalleled access to the latest research and analysis in the field of immunodeficiencies. More information on this event and registration here. Through the tremendous advances in the technology of mass spectrometry-based proteomics and its applications, the research has expanded to most areas of biology that deal with proteins.

This conference will focus on the application of proteomics to cell biology and unraveling disease mechanisms by addressing conceptually novel ways to study long-standing questions in these fields. Proof of Concept Grants are therefore on offer only to Principal Investigators whose proposals draw substantially on their ERC funded research. ERC Starting Grants are designed to support excellent Principal Investigators at the career stage at which they are starting their own independent research team or programme.

The InfoDay on H Program for Health, Demographic Change and Wellbeing, will help interested stakeholders to find out information about the upcoming calls, development of a H project proposal, partnerships, etc. This two days event aim to foster research on Health new technologies, innovation, sustainable health.

More information and inscription on the European Commission dedicated page here. It will be an opportunity to meet all European Partners and stakeholders involved in Rare Diseases, thus fostering European cooperations. More info and registration here. The Norvegian Council for Research, together with the French Institute of Oslo organise this event in order to gather Project leaders and potential European partners from the scientific community around research projects in Rare Diseases.